For the time being, this blog will be less about the boys, and more about keeping family and friends updated on my (moms) condition while I am in the hospital.

I have been here for 9 days now, and look ro have another 2 weeks to go at this point.

It's been a rough few days, but we are making (slow) progress.

The high dose prednisone they tried for the first week did nothing at all so on Wed it was decided that we needed to do 2 things - keep me from starving (my gut is not working at all) and try a different treatment approach.

So on Wed afternoon I had a PICC line placed in my arm (large IV that goes directly to the heart) and today they started running something called TPN (total parenteral nutrition) - essentially they are feeding me through my IV rather than my gut - I should start feeling stronger pretty fast.

That went very well - the picc line went in very easily which I was relieved with as the last time they tried to put a picc line in was a nightmare. My blood vessels do NOT like being poked and in the past any time they try to place lines the vessels clamp shut and they cannot. So the PICC placement was a huge relief.

Today the second half of the plan was attempted - they are going to do a treatment called plasmapheresis, where they run my blood through a machine to clean out all the antibodies that are attacking my nerves.
To do this they need to place another line. They tried to place the line in my neck today (picture a big IV in the neck - ick) and my blood vessels lived up to their reputation this time. The docs spent an hour trying to get the line in. Much cursing was involved. After all the work and frustration they had to give up, and I have no line.

They were dumfounded. But I believe they believe me now when I tell them my veins are stubborn.

So tomorrow I will go down to Interventional Radiology so they can try to place a different kind of line under an xray machine. I have asked if they can give me consious sedation/drug me up and they sound as though they will...

Tonite I'm sore, tired, and looking forward to feeling better from the tpn at least. Also looking forward to getting this treatment over with so I can get to feeling better.

I have the sweetest quiet little old french lady for a roomate now so hopefully she sleeps well.

Well that's tonite... I'll try to update regularly while I'm here as it's easier for family to check in.

Trying to stay positive.



  1. (((HUGS))) Keely, praying the line went in successfully, what a rough week for you. Thinking about you, hope youre doing better today, hugs to your boys-
    Heidi & Jack.


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